A personal account of my dealings with progressive multiple sclerosis. And my battle with trigeminal neuralgia and the brain surgery that stopped the pain!
Friday, October 9, 2009
You know some how we're conditioned that to use a crutch is a sign of weakness?
But Tommy has been encouraging me to use the cane more often as he knows I hesitate to do things with the family that will require much walking, especially in the dark.
In stores I always grab the cart because it gives me the security I desire along with something to lean on.
But yesterday when we went to the Fall Festival and I took the cane (it is a special cain as it was not only my Father's but his Father's before that)
I was amazed how much more secure I felt walking in the crowded street at the fall festival.
I've decided that a cane is something to be thankful for. Now maybe I'll have an artist friend (Robin.. Robin) paint something pretty on it because it is just plain wood.
So if you see me with a cane... just know that I am choosing to add stability and fearlessness to my life.
Maybe I'll encourage someone else that using a cane is not a bad thing but an added help... and maybe life can be enjoyed more w/o being worried about missing a step all the time.
Monday, October 5, 2009
I fell in love with this man when I was in 8th grade. Really! He was from a close knit family who literally lived on the other side of the rail road tracks. My parents weren't happy. #1 because I was too young for love and #2 because of his social economic class-- concerned I could never be happy without a fellow who would have lots of money to care for me.
He left town the day he turned 16 to join the Merchant Marines. My heart was broken. But while he was away I did all l could to help him remember me. I bought his high school pictures and sent them to his Mother. (always good to get on the Mom's good side)
I wrote him letters regularly. (not even realizing that he was pretty much unable to read.. a fellow friend in the Merchant Marines seamanship school read my letters to Tommy and wrote letters back to me that Tommy copied and sent)
Ultimately he returned home before shipping out. I will always be grateful for an older man (maybe he was 30 LOL) who told Tommy that this was not the life he should peruse. He told Tommy that if there was a girl back home who loved him to return and make the most of it.
I was a sophomore in high school when Tommy came back. And he suddenly looked so mature and grown up.
We ran away to be married on Easter Sunday of 1973. Of course no judge in his right mind would marry us. We ended up hiding out in a cave under High Knob at Shawnee National Forest. We slept in his car at night and finally had to sell his spare tire to get $5.00 for gas and the oil that his car seemed to use more of than gas.
When we ran completely out of money... (about 3 weeks) we returned to our home town. I called my parents and boy was I in trouble. They said they would not sign for us to be married ever. And my Mother being the director of Planned Parenthood at the time only wanted to get me on the birth control pill.
Tommy found a job at a tire shop. I slept in his car (hiding) in the tire shop parking lot during his working hours. Sometimes I ventured to a "head shop" called Folz City in downtown Evansville. (walking.. remember I was too young to drive)
Tommy's boss gave him a couple weeks pay in advance. So we found an apartment. I remember well it was $25.00 per week yet we paid $30.00 for 5 weeks to get our required deposit paid for.
Once settled (it was a furnished apt) I wanted to get back to my high school. I walked there one day and they told me that unless I was in school the following week they would arrest my parents for child neglect. I had to be in school either living at home with my legal guardians or married.
So I called my Mother and with the legal action coming down on them and their seeing how determined I was they decided to go and sign a waver for us to be married.
We had a wedding at Tommy's Grand Mother's house. I have no pictures as the only one who brought a camera forgot her film!!
My parents showed up quite upset.
Long story short.. our love has continued and grown. My parents ultimately feel in love with Tommy as well. After three years we had our first son and just a year later our second.
Tommy has been my best friend and closest family for my entire life.
I do not regret our early marriage. Because had I waited he may have not been available.
And now 35 years later.. and dealing with chronic illness, I've found this dear man to be so selfless and giving that I am just falling in love with him more.
When I was twenty one years old I got saved after reading a book titled "666" by Salem Kirban. It wasn't for a couple of decades that Tommy also was born again. And it is just recently that he is beginning to desire even a closer walk with Jesus.
"The rich and poor meet together; the Lord is the maker of them all" Proverbs 22:2
"Let thy mercies come unto me, O Lord, even thy salvation, according to thy word." Psalm 119:41
"Now the God of hope fill you with all joy and peace in believing, that ye may abound in hope, through the power of the Holy Ghost." Romans 15:13
- Love Jesus! Mac Enthusiast! Love all things tech!Married to high school sweetheart for 42 years!Multiple Sclerosis tries to get me down.Previous Trigeminal Neuralgia sufferer-successful MVD in Nov of 2006.Mother of 2 grown sons. GrandMotherGardener, Twittering Lady.
Podcast lover. Previous fitness instructor.. previous Childbirth educator, previous school bus driver, previous racewalker.Lots of previous.. but unending future! Gifts: encouragement, helps, discernment. Lover of People.Recently my youngest son 33yrs old- (now 37) was diagnosed with early onset Parkinson's disease- this is the toughest road yet. But by God's divine hand- we'll survive.____________________________I am exceedingly humbled that He knows me by name and actually died that I might live. And then He sought me out! This is joy unspeakable.___________________________Did I mention that I had an uncle named Steve ?